Social Security has an obligation to provide benefits quickly to
applicants whose medical conditions are so serious that their
conditions obviously meet disability standards.
Compassionate allowances are a way of quickly identifying
diseases and other medical conditions that invariably qualify under the
Listing of Impairments based on minimal objective medical information.
Compassionate allowances will allow Social Security to quickly target
the most obviously disabled individuals for allowances based on
objective medical information that we can obtain quickly.
Commissioner
Astrue has held two Compassionate Allowance public outreach hearings.
The first was on rare diseases and the second was on cancers. A third
hearing on brain injuries was held on November 18, 2008.
The
initial list of Compassionate Allowance conditions was developed as a
result of information received at public outreach hearings, public
comment on an Advance Notice of Proposed Rulemaking, comments received
from the Social Security and Disability Determination Service
communities, and the counsel of medical and scientific experts. Also,
we considered which conditions are most likely to meet our current
definition of disability.
A modest 50 conditions have been selected for the initiative’s rollout. The list which follows may expand over time.
List of Conditions
1 Acute Leukemia
2 Adrenal Cancer – with distant metastases or inoperable, unresectable or recurrent
3 Alexander Disease (ALX) – Neonatal and Infantile
4 Amyotrophic Lateral Sclerosis (ALS)
5 Anaplastic Adrenal Cancer – with distant metastases or inoperable, unresectable or recurrent
6 Astrocytoma – Grade III and IV
7 Bladder Cancer – with distant metastases or inoperable or unresectable
8 Bone Cancer – with distant metastases or inoperable or unresectable
9 Breast Cancer – with distant metastases or inoperable or unresectable
10 Canavan Disease (CD)
11 Cerebro Oculo Facio Skeletal (COFS) Syndrome
12 Chronic Myelogenous Leukemia (CML) – Blast Phase
13 Creutzfeldt-Jakob Disease (CJD) – Adult
14 Ependymoblastoma (Child Brain Tumor)
15 Esophageal Cancer
16 Farber’s Disease (FD) – Infantile
17 Friedreichs Ataxia (FRDA)
18 Frontotemporal Dementia (FTD), Picks Disease -Type A – Adult
19 Gallbladder Cancer
20 Gaucher Disease (GD) – Type 2
21 Glioblastoma Multiforme (Brain Tumor)
22 Head and Neck Cancers – with distant metastasis or inoperable or uresectable
23 Infantile Neuroaxonal Dystrophy (INAD)
24 Inflammatory Breast Cancer (IBC)
25 Kidney Cancer – inoperable or unresectable
26 Krabbe Disease (KD) – Infantile
27 Large Intestine Cancer – with distant metastasis or inoperable, unresectable or recurrent
28 Lesch-Nyhan Syndrome (LNS)
29 Liver Cancer
30 Mantle Cell Lymphoma (MCL)
31 Metachromatic Leukodystrophy (MLD) – Late Infantile
32 Niemann-Pick Disease (NPD) – Type A
33 Non-Small Cell Lung Cancer – with metastases to or beyond the hilar nodes or inoperable, unresectable or recurrent
34 Ornithine Transcarbamylase (OTC) Deficiency
35 Osteogenesis Imperfecta (OI) – Type II
36 Ovarian Cancer – with distant metastases or inoperable or unresectable
37 Pancreatic Cancer
38 Peritoneal Mesothelioma
39 Pleural Mesothelioma
40 Pompe Disease – Infantile
41 Rett (RTT) Syndrome
42 Salivary Tumors
43 Sandhoff Disease
44 Small Cell Cancer (of the Large Intestine, Ovary, Prostate, or Uterus)
45 Small Cell Lung Cancer
46 Small Intestine Cancer – with distant metastases or inoperable, unresectable or recurrent
47 Spinal Muscular Atrophy (SMA) – Types 0 And 1
48 Stomach Cancer – with distant metastases or inoperable, unresectable or recurrent
49 Thyroid Cancer
50 Ureter Cancer – with distant metastases or inoperable, unresectable or recurrent




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